thereyougothen: (problem knitting)
[personal profile] thereyougothen
I had my follow up with the breast cancer people today. Unfortunately, I am one of the unlucky 10% and not one of the lucky 90%.

They found 2 areas of invasive breast cancer. One of which was 11mm. I thought that sounded huge, but the doctor said it wasn't. I don't really understand all of it, surely if it had been an 11mm lump we would have noticed it before, so obviously this one doesn't turn into lumps. Another reason to be grateful that I had the Paget's symptoms. without those, i'd still be ignorant of what was stalking me.

the positive news is that they took out 4 or 5 (i forget) lymph nodes (the ones in the breast) and they were all clear. there was also a wide clear margin of healthy breast tissue around the areas of cancer. but i guess it wasn't all so pre-cancerous after all.

it is herceptin positive, the lab report said 3+, I don't know what scale the 3 is on, but the doctor said it was positive.

the thing is, i really should not have been there today - they haven't had the case conference about me yet, so they have not come up with a suggested "adjuvant" treatment regime. the consultant is away, and i think i got sent an automatic appt at 3 weeks post-op, but they should have waited a week. the case conference is on monday. i have another appointment to go back on wednesday. i could have (and would have much preferred) to spend the next 5 days in blissful ignorance of this. i wouldn't have been worried, i was convinced going in there this morning that it was going to be good news, i was incredibly shocked to hear that it wasn't, incredibly shocked.

i think there are 3 options, or is it three treatments - chemo, which i hope to god they don't suggest. he thinks it's unlikely, but doesn't want to say for sure until after the case conference. there's herceptin, and tamoxifen. there may be more options, i don't know. we decided not to ask too many questions this morning, i mean, why bother, really. i just wanted to get out of there.

i won't get radiotherapy, because they have got rid of all the cancer. or something like that.

i hope it's not chemo.

my mum and dad have taken the boys to macdonald's and then to see Ratatouille. this is good, because i really don't want to talk to them about it right now. they were here when i got home, so i have told them, so they know.

Bill has gone into work to a meeting. i told him to, it's fine, i can cope for a couple of hours on my own.

he got all my wire and beads stuff out for me before he went, so i will go now and sit and play with that.

things are pretty crap right now, eh?

Date: 2007-11-02 04:32 pm (UTC)
From: [identity profile] eastofedin.livejournal.com
Oh shit. That's not what I was hoping to read. (((((hugs)))) Yes, I'm shocked too.

Date: 2007-11-02 05:20 pm (UTC)
From: [identity profile] buzzy-bee.livejournal.com
B*gger. So, so sorry to hear this.

Hugs.

Date: 2007-11-02 06:24 pm (UTC)
From: [identity profile] halle.livejournal.com
I was going to start this comment with the string of curse words, but that's not really helpful, is it? I'm so sorry. When can we come round to see you again? Or do you need some space?

Date: 2007-11-05 01:58 pm (UTC)
From: [identity profile] thereyougothen.livejournal.com
i'm way behind here....

i don't need space, far from it! come whenever you can.

Date: 2007-11-02 06:42 pm (UTC)
From: [identity profile] chatirygirl.livejournal.com
Yes, things do seem pretty crap, I'm so sorry to read this, and I hope you don't have to go through chemo either.

Take care.

Date: 2007-11-02 07:54 pm (UTC)
From: [identity profile] tafagirl.livejournal.com
Oh no, I totally didn't expect this either!! I'm so sorry, this bites :-( (((HUGS)))

Date: 2007-11-02 08:50 pm (UTC)
From: [identity profile] bloody-nora.livejournal.com
as if you haven't been through enough already. I'm thinking of you x

Date: 2007-11-03 02:46 pm (UTC)
From: [identity profile] blottedcopybook.livejournal.com
Oh love :( I don't know what to say, and I'm so shocked because when I saw you on Thursday you just looked the picture of health. I understand now why you were saying you felt tired. I have my fingers crossed that your next consultation will be positive and will go the way you want it to.

Date: 2007-11-05 01:56 pm (UTC)
From: [identity profile] thereyougothen.livejournal.com
i'm ok, really. or i am most days. if you keep those fingers crossed through wednesday morning, i'd be most grateful!

i've found yarn shopping to really help as well...

Date: 2007-11-03 07:46 pm (UTC)
From: (Anonymous)
oh nightmare. so glad that you've got your family with you to help you through. thinking of you.

rosie caught knitting

Date: 2007-11-04 04:58 pm (UTC)
From: (Anonymous)
I am so sorry to hear that Alison. My thought are with you. If you feel like company at all I'm more than happy to come and listen, or just knit. I can also be armed with more gingerbread if that might help.
Take care, Sally X

Date: 2007-11-04 10:53 pm (UTC)
From: [identity profile] radegund.livejournal.com
Oh, I'm so sorry to read this! I'll be thinking of you.

Date: 2007-11-05 11:03 am (UTC)
From: [identity profile] chillies.livejournal.com
Sorry to hear your news.

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